Join a Research Study
Shaping the Future of EDS Research
Now Enrolling
Participation in research is your chance to contribute to groundbreaking discoveries that can transform lives. Your input, whether through our surveys, clinical trials, or other research opportunities, can shape the development of new treatments and interventions.
Current Studies
EDS Biorepository
Help Advance EDS Research: Join Our Study
The Norris Lab at the Medical University of South Carolina is seeking volunteers to participate in a research study aimed at building a comprehensive Ehlers-Danlos Syndrome (EDS) biorepository. By joining, you will contribute to a long-term biospecimen databased designed to support future discoveries in EDS and its related comorbidities.
This initiative connects clinical care and research to better understand the spectrum and mechanisms of EDS and related conditions.
Eligible individuals are:
• 2 years of age or older
• Have a diagnosis of Ehlers-Danlos syndrome
• Are receiving care at the Medical University of South Carolina for EDS
If you are interested in participating, please visit:
https://redcap.link/edsbiorepository
For questions or more information, please contact:
Tayler Goectau
Clinical Research Coordinator
hEDS Genetic Registry
Thank you so much for your interest in enrolling in our genetic registry!
Due to the high volume of participation, we have paused enrollment at this time.
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If you have previously enrolled, we thank you for your patience as we process the many submissions we have received. We are continuing to consent participants, and a clinical research coordinator will contact you if you are eligible to participate.
For any additional questions, email us at edsregistry@musc.edu