Join a Research Study

Shaping the Future of EDS Research

Now Enrolling

Participation in research is your chance to contribute to groundbreaking discoveries that can transform lives. Your input, whether through our surveys, clinical trials, or other research opportunities, can shape the development of new treatments and interventions.

Current Studies

EDS/HSD Clinical Manifestations Survey

We are pleased to announce that enrollment for this study is now complete and will share results as they are published. Thank you all for your valuable participation!

hEDS Genetic Registry

Thank you so much for your interest in enrolling in our genetic registry!

Due to the high volume of participation, we have paused enrollment at this time.

If you have previously enrolled, we thank you for your patience as we process the many submissions we have received. We are continuing to consent participants, and a clinical research coordinator will contact you if you are eligible to participate.

For any additional questions, email us at edsregistry@musc.edu