Join a Research Study
Shaping the Future of EDS Research
Now Enrolling
Participation in research is your chance to contribute to groundbreaking discoveries that can transform lives. Your input, whether through our surveys, clinical trials, or other research opportunities, can shape the development of new treatments and interventions.
Current Studies
EDS Biorepository
Help Advance EDS Research: Join Our Study
The Norris Lab at the Medical University of South Carolina is seeking volunteers to participate in a research study aimed at building a comprehensive Ehlers-Danlos Syndrome (EDS) biorepository. By joining, you will contribute to a long-term biospecimen databased designed to support future discoveries in EDS and its related comorbidities.
This initiative connects clinical care and research to better understand the spectrum and mechanisms of EDS and related conditions.
Eligible individuals are:
• 2 years of age or older
• Have a diagnosis of Ehlers-Danlos syndrome
• Are receiving care at the Medical University of South Carolina for EDS
If you are interested in participating, please visit:
https://redcap.link/edsbiorepository
For questions or more information, please contact:
Tayler Goectau
Clinical Research Coordinator
Inclusion Criteria:
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Participants who meet the 2017 diagnostic criteria for hEDS or HSD4-5 with persistent symptoms in at least two of the domains to be followed during the intervention (pain, fatigue, sleep, anxiety, depression, quality of life, GI function, autonomic function and immune function)
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Mentally capable of reading, writing, giving consent, and following instructions
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Exclusion Criteria:
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MRI-contraindicated implanted medical devices;
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pregnant
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history of seizures
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prior history of trauma or damage to ear
