Part 2: Understanding Tethered Cord Syndrome

Co-occurence of tethered cord syndrome and cervical instability in hypermobile Ehlers-Danlos syndrome

Welcome to the third installment of Breaking Down the Research, a new science communication series from the Norris Lab. Our goal is simple: to make our research accessible, relevant, and directly impactful to the community. We’ll be sharing clear, community-centered explanations of the findings from our lab, old and new.

What is this study about?

This study presents a review of the literature and a case study of a 20 year old female with hEDS who underwent surgical interventions for these conditions, highlighting the challenges in diagnosing and managing these complexities and underscoring the importance of tailored treatment strategies to improve patient outcomes. To best translate the findings from this research, we broke up this study into three installments, with the second one focused on an in-depth understanding of tethered cord syndrome.

tethered cord .pdf

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Have lingering questions?

Check out this video we made! https://www.facebook.com/thenorrislab or follow us on instagram @thenorrislab

Read the full article: https://pmc.ncbi.nlm.nih.gov/articles/PMC11288835/

At the Norris Lab, we believe that science shouldn’t live behind paywalls or in academic jargon. It should live in the hands of the people it’s meant to serve. With Breaking Down the Research, we’re not just sharing findings. We’re building bridges between patients, practitioners, and researchers. Whether you’re newly diagnosed, a long-time advocate, a curious caregiver, or a fellow scientist, you deserve clear, compassionate access to the information that shapes care. This series is for you.

  -- The Norris Lab