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Norris Lab
  • Home
  • Research
    • Lab Members
    • Fibrosis
    • Valve Development
    • Ehlers-Danlos Syndrome
    • MEK/ERK in MVP
  • Intern Program
  • Publications
  • Donate
  • News
  • Contact Us
  • More
    • Home
    • Research
      • Lab Members
      • Fibrosis
      • Valve Development
      • Ehlers-Danlos Syndrome
      • MEK/ERK in MVP
    • Intern Program
    • Publications
    • Donate
    • News
    • Contact Us

EDS Resources

Below are a list of resources that may be helpful for patients and physicians treating those with hEDS.

For Clinicians:

hEDS Diagnostic Checklist

RCGP EDS Toolkit

Ehlers Danlos CME

Project Echo

hEDS Literature Review

hEDS Together

Ehlers Danlos Research Foundation

Expert Information from TMS

Mast Attack Provider Primer



For Patients:

Ehlers Danlos Society

Hypermobility Syndromes Association

Dysautonomia International

Bobby Jones Chiari Syringomyelia Foundation

EDS Support UK

Ehlers Danlos News

hEDS Literature Review

Hypermobility MD

Spinal CSF Leak Foundation

The Mast Cell Disease Society

The Mast Cell Action

UK Masto

EDS Hub

EDS Awareness, a.k.a. Chronic Pain Partners



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