Contact Us

To enroll in our hEDS patient registry to be a part of our genetic discoveries, you can fill out this survey. If you are eligible, a clinical research coordinator from the Norris Lab will contact you.

For any additional questions about our hEDS research and our registry, email us at

Dr. Norris can be reached at

Follow us on Twitter: @NorrisLab

Office: Room 608, Children's Research Institute

Office: 843-792-3544

Lab: Room 604F, Children's Research Institute

Lab: 843-792-1544